{"id":73737,"date":"2020-10-01T09:30:36","date_gmt":"2020-10-01T06:30:36","guid":{"rendered":"https:\/\/www.giurgiuveanul.ro\/stiri\/?p=73737"},"modified":"2020-10-01T09:34:56","modified_gmt":"2020-10-01T06:34:56","slug":"si-giurgiu-este-alaturi-de-alessia-daruieste-cumparand-la-targul-caritabil-din-parcul-alei","status":"publish","type":"post","link":"https:\/\/www.giurgiuveanul.ro\/stiri\/si-giurgiu-este-alaturi-de-alessia-daruieste-cumparand-la-targul-caritabil-din-parcul-alei\/","title":{"rendered":"\u015ei Giurgiu este al\u0103turi de Alessia! D\u0103ruie\u015fte cump\u0103r\u00e2nd… la T\u00e2rgul caritabil din Parcul Alei!"},"content":{"rendered":"

\"\"<\/a>O \u021bar\u0103 \u00eentreag\u0103 lupt\u0103 pentru Alessia, o feti\u021b\u0103 de numai un an \u0219i trei luni, din Constan\u021ba, r\u0103pus\u0103 la pat de o boal\u0103 crunt\u0103. Amiotrofia muscular\u0103, boala rar\u0103 care \u021bintuie\u0219te copiii la pat dinainte s\u0103 \u00eenve\u021be s\u0103 mearg\u0103. S-a dovedit \u0219tiin\u021bific c\u0103 aceast\u0103 boal\u0103 r\u0103spunde pozitiv la un tatament care const\u0103 \u00eentr-un vaccin foarte scump. Tratamentului salvator cost\u0103 2.100.000 de dolari,\u00a0la care se adaug\u0103 cheltuielile de spitalizare. O suma imens\u0103, pe care t\u00e2n\u0103ra mam\u0103 nu ar fi reu\u0219it s\u0103 o str\u00e2ng\u0103 vreodat\u0103, f\u0103r\u0103 ajutor.<\/p>\n

Mama Alessiei pove\u0219te\u0219te cu durere \u00een suflet cum a debutat boala feti\u021bei.<\/p>\n

\u201d\u00centr-o sear\u0103, corpul Alessiei a \u00eencetat s\u0103 se mai mi\u0219te. Pur \u0219i simplu, dintr-o dat\u0103 Alessia nu \u00ee\u0219i putea mi\u0219ca nici degetele, nimic! Totul s-a \u00eent\u00e2mplat peste noapte! De atunci au \u00eenceput investiga\u021biile, urmate de diagnosticul de SMA1. V\u0103 rog s\u0103 m\u0103 crede\u021bi c\u0103 nu am putut s\u0103 accept aceast\u0103 boal\u0103, cu toate c\u0103 medicii \u0219i analizele o confirmau. Am plecat \u00een Italia, unde am primit acela\u0219i diagnostic. SMA mi-a furat bucuria de a-mi vedea copilul cresc\u00e2nd independent \u0219i m-a alungat din raiul p\u0103rin\u021bilor copiilor s\u0103n\u0103to\u0219i. \u00cens\u0103 \u0219tiu c\u0103 de unde Dumnezeu ia, El d\u0103 \u00eenapoi\u201d,<\/em> poveste\u0219te mama Alessiei.<\/p>\n

Dumnezeu i-a redat speran\u021ba ca Alessia s\u0103 fie un copil s\u0103n\u0103tos.
\n\u00cen total, \u00een \u021bara noastr\u0103, sunt diagnostica\u021bi cu amiotrofie muscular\u0103 spinal\u0103 zeci de copii.O \u021bar\u0103 \u00eentreag\u0103 este al\u0103turi de Alessia \u00een drumul ei c\u0103tre ob\u021binerea celui mai scump tratament din lume, Zolgensma. \u00cen aceast\u0103 toamn\u0103 voluntarii s-au mobilizat \u0219i organizeaz\u0103 t\u00e2rguri \u00een 18 ora\u0219e ale \u021b\u0103rii, unde, \u00een medie, se str\u00e2ng \u00eentre 20.000-60.000lei din v\u00e2nz\u0103ri.<\/p>\n

Un astfel de t\u00e2rg, cu v\u00e2nzare, va avea loc \u0219i \u00een<\/strong> Giurgiu, \u00een Parcul Alei, \u00een perioada 1-4 octombrie, \u00eencep\u00e2nd cu orele 15:00<\/strong> p\u00e2n\u0103 la \u00eenchiderea parcului.<\/p>\n

Ce g\u0103sim \u00een t\u00e2rg: haine, juc\u0103rii, c\u0103r\u0163i, rechizite, electrocasnice<\/em> etc.<\/p>\n

Cei care vor s\u0103 fac\u0103 dona\u0163ii le pot duce pe strada Tineretului, bloc E3, num\u0103r telefon: 0766.929.066<\/strong> – Andreea.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

O \u021bar\u0103 \u00eentreag\u0103 lupt\u0103 pentru Alessia, o feti\u021b\u0103 de numai un an \u0219i trei luni,<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-73737","post","type-post","status-publish","format-standard","hentry","category-breaking-news"],"_links":{"self":[{"href":"https:\/\/www.giurgiuveanul.ro\/stiri\/wp-json\/wp\/v2\/posts\/73737","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.giurgiuveanul.ro\/stiri\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.giurgiuveanul.ro\/stiri\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.giurgiuveanul.ro\/stiri\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.giurgiuveanul.ro\/stiri\/wp-json\/wp\/v2\/comments?post=73737"}],"version-history":[{"count":0,"href":"https:\/\/www.giurgiuveanul.ro\/stiri\/wp-json\/wp\/v2\/posts\/73737\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.giurgiuveanul.ro\/stiri\/wp-json\/wp\/v2\/media?parent=73737"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.giurgiuveanul.ro\/stiri\/wp-json\/wp\/v2\/categories?post=73737"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.giurgiuveanul.ro\/stiri\/wp-json\/wp\/v2\/tags?post=73737"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}